Chronic Disease


Getting a Diagnosis When You’re Worried Your Child Has a Chronic Illness

The journey to finding out if your child has a serious disease or condition can be long and overwhelming. When my younger son confided he was having scary symptoms at 13 years old, our hearts froze with fear while keeping reassuring smiles on our faces for him. Trying to stay calm and positive that it […]

Boy outside with scenery at diagnosis with serious disease

School and Medical Supplies

Back to School Tips for Children with Chronic Illness

Preparing a child or teen with chronic illness or medical complexities for back to school poses a unique level of anxiety and challenges. Worrying about how the school year will go for their health, whether the teachers and school will accommodate their needs, and if they will enjoy a satisfying social outlet like other children. I […]


Coping and Self Care When Your Child Is in the Hospital 2

When your child is sick in the hospital, it feels like you’ve entered an alternative universe. That heart ache hit me like a tidal wave while caring for my desperately ill son in two children’s hospitals for eight months straight in 2015. Scared witless as Crohn’s Disease spread inflammation throughout my son’s digestive track, all I […]

Boy in hospital

Hospitalized sick boy and younger healthy boy

How to Support a Mom or Dad Caring for a Child with Serious Illness 1

May 2015 was the worst Mother’s Day and birthday of my life. Watching over my desperately ill younger son lying in a hospital bed with a maze of tubes coming out of his nose and arm. There is nothing more painful for a Mom than watching your child suffer and worrying about how to make him well. Crohn’s […]


Facing Holidays with Your Child in the Hospital

Any time your child is sick in the hospital is beyond hard. But during holidays usually so full of happiness and family traditions, it is a true test of the heart. Add to the mix worrying about giving your other children and family members some semblance of a holiday leaves you feeling literally split in […]


Brothers Together in Hospital

When a Child’s Serious Illness Changes Everything

  The Celebrating Moms and Their Choices Series In the flash of an eye everything we ever believed about being a Mom and work-life balance can be tested in a crucible of life’s most challenging reality. For me that moment started in July 2014 when our younger son nervously confided he had been having terrible […]