Caregiver


Getting a Diagnosis When You’re Worried Your Child Has a Chronic Illness

The journey to finding out if your child has a serious disease or condition can be long and overwhelming. When my younger son confided he was having scary symptoms at 13 years old, our hearts froze with fear while keeping reassuring smiles on our faces for him. Trying to stay calm and positive that it […]

Boy outside with scenery at diagnosis with serious disease

School and Medical Supplies

Back to School Tips for Children with Chronic Illness

Preparing a child or teen with chronic illness or medical complexities for back to school poses a unique level of anxiety and challenges. Worrying about how the school year will go for their health, whether the teachers and school will accommodate their needs, and if they will enjoy a satisfying social outlet¬†like other children. I […]


Coping and Self Care When Your Child Is in the Hospital 2

When your child is sick in the hospital,¬†it feels like you’ve entered an alternative universe. That heart ache hit me like a tidal wave while caring for my desperately ill son in two children’s hospitals for eight months straight in 2015. Scared witless as Crohn’s Disease spread inflammation throughout my son’s digestive track, all I […]

Boy in hospital